Wednesday 11 January 2012

Bad times

Oops a daisy I have forgot all about my blog of late.
Not that much to post though as having a major shitty time of it,
Xmas and new year went ok although suffered badly over xmas.  I ventured out with hubby and the bloody electric chair on new years eve.  Lord did I suffer but it was nice to have a night out with friends.
I got a beautiful pandora bracelet and lovely charms off hubby for our wedding anniversary.

Me, I am still having vision problems, muscle spasms where I should not have them and problems with my bladder. (I cant pee enough in one day to do those stupid 24 hr water tests) The tests are on hold until I can pee enough as I still have 4 bottles to fill. I only go two sometimes 3 times a day and then only a little as my muscles start to spasm and I stop.

My vision still keeps going blurry and the pins and needles in my extremities is getting worse.  I have docs on Monday with the good doctor so am going to politely (cough cough) insist she sends me to see a Neurologist for further tests.  I want to rule out MS, it sounds silly but have been reading up on it and I have all the symptoms but have found out that a large majority of sufferers are told it is FM for years until they get the right tests and suddenly find out it is MS.  Doc thinks it might be Myasthenia Gravis cos of my eyes and the fact they have drooped as well but I dont think it is.  I know how I feel and what symptoms I have so I will be seeing a Neuorologist whether she thinks I should or not.  It isobviously a problem in my brain somewhere as too many parts are affected.  My eyes being the scariest.

Doc is trying me on Gabapentin which is crap.  I cant take Morphine whilst on it and am in complete agony all the time.  Now the Morphine has stopped I am having spasms in one of my legs that last for about 10 days so far without relaxing.  It is more like spasticity than a spasm.

Apart from that everything is just great lol.